my 3month old daughter has to have surgery. she was diagnosed with cranio the coronal suture is closed. if i can know some info how other procedures went and what surgery you went with, the endoscopic or the major a cut across the head and also if another surgery was done. we are here in north carolina and the surgen we are working with is martin henegar and plastic surgen is david matthews if you heard of them let me know and also where did you have the surgery done.
I wish I could help you, but I only know about any of this from having seen it on the internet and finding it interesting. Perhaps your surgeon could help you find people who have been through these procedures with their kids.